Support for progressive neurological conditions

These videos have been created to support people living with progressive neurological conditions, as well as the family members, friends and carers who support them.

In 2025/2026 St Michael’s Hospice held a monthly support group for patients and carers affected by progressive neurological conditions. As part of the Active Connections programme, we invited a selection of attendees and carers to share their voices on film.  These videos offer a personal insight into living with, or caring for someone with, a life-limiting neurological condition.  Through their own words, participants highlight the realities, challenges and impact of these conditions, as well as what they would like others to better understand.

The collection also includes short films from different members of our team, explaining the support, guidance and practical help we can offer at St Michael’s Hospice to people affected by progressive neurological conditions. These videos introduce the range of support available and aim to help people feel more informed, reassured and connected.

How to access support

You can call Hospice Line for specialist palliative care advice whenever you need it.

We’re here for everyone involved in a patient’s care, whether you’re:

  • A patient experiencing a new or worrying symptom
  • A carer unsure about medication or pain relief
  • A doctor or healthcare professional with a clinical query.

Call us anytime on 0330 127 2161

Patient's Voice

In these videos, people speak openly about what it is like to live with a progressive neurological condition.  They share how this affects daily life, relationships, independence and wellbeing while also reflecting on what they wish others knew about their experiences.  Their voices help raise awareness and understanding of the person behind the diagnosis.

Heather
For privacy reasons Vimeo needs your permission to be loaded.
Robin
For privacy reasons Vimeo needs your permission to be loaded.
Tommy
For privacy reasons Vimeo needs your permission to be loaded.
Gerald
For privacy reasons Vimeo needs your permission to be loaded.
Barbara
For privacy reasons Vimeo needs your permission to be loaded.

Carer’s Voice

These videos give carer’s the opportunity to share their own experiences of supporting someone with a neurological illness. They explore both the day-to-day reality of providing care and the wider impact that caring can have on a carer’s own life, health and wellbeing.

Supporting someone with a progressive neurological condition.

What is important for you?

For privacy reasons Vimeo needs your permission to be loaded.
For privacy reasons Vimeo needs your permission to be loaded.

The Hospice supports people with progressive neurological conditions and their carers, with collaborative input from various members of the Multi-Disciplinary Team.  These videos highlight what we can offer you.

Spiritual Support Team
For privacy reasons Vimeo needs your permission to be loaded.
Physiotherapy Team
For privacy reasons Vimeo needs your permission to be loaded.
Community Outreach Team
For privacy reasons Vimeo needs your permission to be loaded.
Occupational Therapy Team
For privacy reasons Vimeo needs your permission to be loaded.
Social Work Team
For privacy reasons Vimeo needs your permission to be loaded.
Wellbeing Assistants
For privacy reasons Vimeo needs your permission to be loaded.
Medical Team
For privacy reasons Vimeo needs your permission to be loaded.
In-Patient Unit
For privacy reasons Vimeo needs your permission to be loaded.

Supporting and empowering our community is at the heart of everything we do.  That’s why we asked our participants to share, in their own words, what they fund most valuable and which moments brought them the most joy during our sessions.

For privacy reasons Vimeo needs your permission to be loaded.